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86 | NOLO’S GUIDE TO SOCIAL SECURITY DISABILITY
file and redo the determination, ignoring
the false information.
It is a crime to do any of the following:
• furnish false information in connection
with your Social Security records or to
obtain someone else’s records
• use an SSN obtained through false
information
• use someone else’s SSN
• disclose or force the disclosure of or use
an SSN in violation of U.S. law
• forge or falsify SSA documents
• conspire over a false claim
• knowingly buy, sell, or alter an SSN
card, or
• process an SSN card or counterfeit an
SSN card.
Civil penalties can also be imposed for
fraud. In 2006, Public Law 108-203 was
amended to impose civil penalties (up to
$5,000 per occurrence) for not notifying
the SSA of changed circumstances that
affect eligibility or benefit amounts.
These penalties apply when a person or
organization knew or should have known
that a withheld fact could affect benefits
and that the failure to come forward was
misleading. For example, penalties would
apply if an individual who has a joint bank
account with a beneficiary continues to
receive the beneficiary’s Social Security
checks after the beneficiary’s death, or if an
individual receives benefits under one SSN
while working under another SSN.
Civil penalties may also apply for
engaging in the following activities:
• selling services to the public that are
available for no cost from SSA, unless
clearly disclosing that fact
• converting a beneficiary’s benefit to a
third party
• claiming that your services are
endorsed by the SSA, including the
misleading use of SSA symbols or
emblems, and
• marketing products or services using
certain prohibited words (such as
“Death Benefits Update,” “Federal
Benefit Information,” “Funeral
Expenses,” or “Final Supplemental
Program”).
You should be aware of these changes
because they are meant to protect the
public, including Social Security disability
beneficiaries.
l
C H A P T E R
Disability Benefits for Children
A. Three Benefit Programs for Children......................................................................................88
1. SSDI Auxiliary Benefits for Children Under 18................................................................88
2. SSDI Benefits for Adults Disabled Since Childhood.....................................................89
3. SSI Benefits for Children..............................................................................................................90
B. Applying for SSDI or SSI Benefits...............................................................................................90
C. Disability Evaluation....................................................................................................................... 103
1. Disability in Children for SSI................................................................................................... 104
2. Disability in Adult Children for SSDI.................................................................................. 106
D. Continuing Disability Reviews for SSI Children............................................................. 107
E. Other Health Care Concerns..................................................................................................... 108
1.Medicaid............................................................................................................................................ 108
2. Children With Special Health Care Needs...................................................................... 108
3. Children in Certain Medical Care Facilities.................................................................... 108
4.Medicare........................................................................................................................................... 109
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88 | NOLO’S GUIDE TO SOCIAL SECURITY DISABILITY
A
bout 1,000,000 children receive
disability benefits from the Social
Security Administration (SSA).
This chapter is for the parents and caregivers
of children—generally considered to be
people under the age of 18—with disabilities,
and for the parents and caregivers of adults
who have been disabled since childhood.
Although some of this information
appears in other chapters, we bring it
together here to provide one place for
important information needed by caregivers
of children.
The person who handles the benefits on
behalf of a child is called, in Social Security
lingo, the representative payee, and must be a
responsible person. The representative payee
is usually a child’s parents.
CAUTION
The representative payee is not
the same as the authorized representative.
An authorized representative is any person,
including an attorney, named in writing by
the claimant/recipient, to act in place of the
claimant/recipient in pursuing his or her rights
under the Social Security Act.
You can use the information in this
chapter to understand the kinds of Social
Security Disability Insurance (SSDI)
and Supplemental Security Income (SSI)
available to an eligible child and to learn
how the SSA evaluates disability claims for
children.
A. Three Benefit Programs
for Children
There are three ways a child might be eligible
for SSDI or SSI benefits.
1. SSDI Auxiliary Benefits for
Children Under 18
Although this is a book about disability
benefits, children eligible for dependents’ or
survivors’ benefits need not be disabled. A
child is eligible for Social Security benefits
simply because he or she is the dependent of
someone receiving disability benefits or the
surviving child of someone who died while
receiving benefits.
Social Security dependents’ benefits are
available to unmarried children under the
age of 18 based on the record of a parent
who collects Social Security retirement or
disability benefits. Social Security survivors’
benefits are available also to children
under the age of 18 based on the record of a
deceased parent who was entitled to Social
Security retirement or disability benefits.
On the record means benefits are paid based
on the earnings record of someone else—
the insured worker who paid enough Social
Security taxes to qualify for SSDI benefits.
Parent means biological parent, adoptive
parent, or stepparent.
Child dependents’ and survivors’ benefits
are known as auxiliary benefits, because
they are based on the disability and earning
record of a parent, not a child’s disability.
CHAPTER 3 | DISABILITY BENEFITS FOR CHILDREN | 89
The theory behind the benefits is that
a disabled parent needs more money to
take care of dependent children, and that
a surviving spouse of a deceased disabled
worker needs more money to take care of
children.
A child found to be eligible for these
benefits can receive them until he or she
turns 18—or 19 if he or she is a full-time
student in elementary or high school. For
full-time students, twice a year—at the
beginning and end of the school year—the
SSA sends the student a form asking whether
he or she is still in school. The SSA may
terminate benefits if the student (or living
parent) doesn’t send back a completed form.
If the child turns 19 during a school term,
the SSA can continue the benefits for up to
two months to allow the student to complete
the term. Before turning 19, a student may
receive benefits during a vacation period of
four months or less if he or she plans to go
back to school full time at the end of the
vacation.
If the student leaves school, changes from
full time to part time, or changes schools,
the student or parent must notify the
SSA immediately. Also let the SSA know
if the student is paid by an employer for
attending school. A student over 18 who
stops attending school generally can receive
benefits again if upon returning to school
full time before age 19. The student must
contact the SSA to reapply for benefits.
If your stepchild receives benefits on your
earnings record, and you and the child’s
parent divorce, the stepchild’s benefit will
end the month following the month the
divorce becomes final. (This is not the case
with biological or legally adopted children.)
You must notify the SSA as soon as the
divorce becomes final.
2. SSDI Benefits for Adults
Disabled Since Childhood
Social Security dependents’ or survivors’
benefits normally end when a child reaches
age 18, or age 19 if the child is a full-time
student. If the young adult is disabled,
however, the benefits can continue as long
as the recipient is disabled.
The rules require both of the following:
• The disability began prior to age 22.
• The recipient is the child of someone
receiving Social Security retirement
or disability benefits or of someone
who was insured for Social Security
retirement or disability benefits but is
now deceased.
Someone who qualifies is said by the SSA
to be an “adult child,” or “adult disabled
since childhood.” Although most recipients
of these benefits are in their 20s and 30s,
the benefit is considered a “child’s benefit”
because of the eligibility rules.
Sometimes, a person doesn’t become
eligible for a disabled “child’s benefit” until
well into adulthood.
EXAMPLE: John retires and starts collecting
Social Security retirement benefits at age
62. He has a 38-year-old son, Ben, who has